Sparsh Shah

Born with Osteogenesis Imperfecta | TEDx Speaker

Who am I

Sparsh was born with an incurable disease called Osteogenesis Imperfecta. This condition makes his bones extremely fragile and brittle – even a hard handshake can break his bones. He cannot bear weight on his hands and legs, so he cannot walk or run like other normal kids. He has had more than 125 fractures in the first 12 years of his life already and the doctors cannot predict how many more are to come.

Sparsh is multi-talented. He performs at community events and has appeared on local radio stations and television shows, besides hosting shows as an MC. He has memorized 250 digits of Pi, can say the 12 longest words in the English dictionary in less than 18 seconds and can speak in four different accents in English. He has written several poems, short stories, motivational/funny speeches (“I am Disabled”), etc., and acted in the developmental reading of a play called The Greatest Choice at the Crossroads Theatre in New Jersey. He was able to spell a 45 letter word, “Pneumonoultramicroscopicsilicovolcanoconiosis,” at the age of 6.

Despite all the challenges he has faced, Sparsh’s spirit is unbreakable. He aspires to sing in front of a billion people one day.

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United States of America

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